Tuesday, August 08, 2006

Posing some questions and giving some answers

There have been several questions posed in my comments. For some reason it never occurred to me to post a comment and answer the questions right away, although I have seen others do so and thought it was really neat. Anywho....

Several of you asked about shared risk programs and whether I had considered that option seeing as how my last IVF and ensuing FET's had gone tits up. As far as I know there are no shared risk programs at Canadian Fertility Clinics. I have checked at my clinic and the other clinics that I know of in Ontario. I have also researched several other clinics in Canada but have not found such a program. If any of my Canadian readers know of such a program, please let me know.

The closest US city to me is Buffalo but the research I have done on their infertility clinics (and I admit it is all web based) seems to suggest that they don't have the best facilities. The closest recommended US fertility clinic to me is in Rochester. http://www.cnyfertility.com/costs.html They charge $20,000.00 (currently $22,500.00 Canadian currency) for their shared risk program. 6 fresh IVF cycles and unlimited FET (if you qualify for the program) in 2 years. If it doesn't work, you get all of your money back. This does not include medication. Most of the clinics here in Canada charge around $5,000.00 for IVF and this includes all the consultations, blood work, ultrasounds etc. It also does not include medication. So in Canada 6 cycles would cost $24,000.00 but I would not get my money back if it did not work. The question, outside of am I prepared to do 6 cycles and how much of a gambler am I, is "am I willing to drive 2 and 1/2 hours for treatment. I mean that doesn't sound like a long drive but you all know how often you have to go to the clinic during an active cycle. Every day for at least 10 days. I would be driving a minimum of 5 hours each of those days. And driving that much when I am very emotional. Just not sure that's smart.

Someone else asked the question about whether my insurance would cover my water damage. No it doesn't. The water poured in through an old window. My policy says it will not cover the cost of repairs if the problem was in existence at the time the policy was put in place (or the cost of ongoing maintenance to ensure such problems do not arise). The window is probably 30 years old - we should have checked it and had it replaced when we moved in. They would cover damage to any of my contents as a result of the water damage. However we didn't have any. The basement is unfinished. We use it as storage and although I am not always so smart, I had the foresight to put almost everything into plastic rubbermaid storage containers.

But as it turns out, it might not cost as much to fix this mess as originally feared. We spent about $300 on various items like a shop vac (to suck up the water), caulking (to temporarily keep any water outside until the window could be replaced, bleach and various other cleaning supplies (to ensure there is no mould growth), etc. The two contractors that have been here to give me quotes have both agreed that nothing major needs to be done to the basement floor. They say it will cost between $600 - $1000 to replace the window and probably $3000 - $4000 to fix the basement floor and replace the wooden support wall that has some rot (and should have alerted us to previous water problems!). That is doable and in fact some of it, like replacing the window, we could do ourselves and save some money.

Inspired by Manuela, http://manuela.blogs.com/thin_pink_line/ , I had lots and lots of baby making sex this month. You girls know that after you progress from sex to IUI to IVF, you have very little faith that something as primitive as sex could get you pregnant. But, it is not a urban legend, not some myth made up 20,000 years ago to give hope to the barren. Manuela is pregnant and has the pictures to prove it. And she got pregnant in between treatment by.... gasp... having sex! Anyway, it is also not a success story for everyone because on CD 32 I am most definitely not pregnant and I am pretty sure I ovulated on CD 20 so it was not too early to test.

So now I am left deciding what to do. I should be staring my period in the next day or two. Once that happens I could get things rolling on a 2nd fresh IVF cycle. I simply go in for day 3 blood work and ultrasound and then on day 21 start suppression (Suprefact)... approximately 8-10 days later I would be staring stims.

Those of you who have read from the beginning will know that I am not enamored with my current IVF clinic. I love my doctor but I do not get to see her all the time and some of the nurses are sweet and some are bitches. The clinics success rates are average, 35% success for women under 35. Success is defined by the presence of a heartbeat at 6 weeks.

The new doctor I went to for a 2nd opinion posts a success rate of 51% for women between 30-35 but success is defined as pregnancy - positive beta. Having been there and no baby to show for it, I don't consider that very fucking successful.

The fertility centre I considered in Calgary posts a success rate of 55%. But again this success rate is listed as "pregnancy rate". Although it is not specified, my guess is that this means positive beta's.

I do not think that I could compare a 35% success of getting people to the point of a beating heart (where I know things can still go wrong but at that point is a lot less likely) to 55% success of getting a positive beta (cause we all know that those fuckers don't always double or keep doubling).

So, what to do. I have read your stories, so I know that I can get bitchy nurses at whichever clinic I go to. My doctor is a very positive woman. She explains things (although sometimes has to be prodded for details like #'s) and seems to believe that she can get us pregnant yet. She tells us that we have been so close (2 chemical) and that we just have to create the right circumstances. Her newest theory is that we should decrease the dose of stims to ensure I don't overstimulate (last time made 32 antral follicles and retrieved 19 mature eggs) and see if we can grow fewer eggs over a longer time period (last time I was slow to start developing but once I did they were mature in approx 5 days).

She says things like "you make great eggs, he has great sperm, you make perfect embryo's, we just need to get that lining as thick and cushy as we can and maybe the lower level of estrogen (last time mine went up to 12,000) will make the environment nicer for them to stick around. Don't give up, I can't guarantee anything but I believe we will get you pregnant yet."

So I am left deciding. I like my doctor. I like that she knows my cervix and very rarely has problems with it anymore (not a statement I can make for new doctors). I did get pregnant the first time. At least 15-20% of pregnancies end in miscarriage. Maybe that won't happen again.

Or maybe... I should change clinics, get out of Dodge, find a new protocol and a change of scenery. Maybe I should suck up the drive and go to the shared risk program in the States.

Please feel free to offer advice or assvice.

Also, I had a great weekend camping. I will post about it, with pictures once I get some work done.

17 comments:

Anonymous said...

What testing have you had done on your uterus? Have you had a hysteroscopy?

I'm glad the basement repair won't be as much as you thought because that? Was a LOT of money!

Krista said...

Lisa, I agree that it is a lot of $$$ but I thought it was going to be well over $10,000.00

On my uterus I have had:

1. abdominal ultrsound - limited capabilities but didn't show any cause for concern.

2. HSG (hysterosalpingogram)which showed the shape and size of my uterus was normal and my tubes were open or so I was told.

3. Sonohysterogram (twice) which showed the inside of my uterus was a nice shape and had no signs of cysts or other problems or so I was told.

I have asked about laproscopy but my doctor insists I do not need it. She does it regularly so it's not that she never uses it but says she only subjects her patients to surgery if there is some reason to believe there could be something wrong with the uterus.

Jenna said...

I just wanted to say that I am going to ponder this post for a while before I reply... Lots of tough issues in it.

soralis said...

I am unaware of any shared risk programs in Canada. We travel 4 hours to our clinic so the 2 1/2 hour drive doesn't sound too bad to me. It just meant a week of extra accomodation costs.

We actually are Calgary patients, I was happier with the clinic before as they weren't quite as busy now. I have heard that they have the best success rates for live births in Canada though.

Good luck with your decision.

Anonymous said...

I'm just so happy for you to be under 35 and have the chance to do more treatment with a realistic success rate. The statistics are such a mind f@ck - you don't know who they treated. There are just no guarantees in life but how nice to have a reasonable hope. I'd vote for the nearby clinic - it's all about monitoring in my opinion.

Meg said...

Krista - Here is my assvice. and it may be a little contentious.

I think that the competitive nature of medicine in the USA leads to all kinds of tricky dealings in the calculation of success rates. I have heard stories of people being rejected from treatment becasue they were going to be "too hard" ruining the clinic's success rates.

So you need to take all these things with a grain of salt. After all, don't we want to know live baby rate, not positive beta rate? What good is a positive beta if it only shows you are having a chemical?

An interesting site: http://www.givf.com/library/whatisyoursuccessrate1.cfm

(Oops, sorry for my rant!!)

Pamplemousse said...

What your doctor said about your E2 level being too high and stimming for a smaller number but better quality eggs sounds spot-on to me. Sometimes a smaller clinic with their hands-on approach can make all the difference to a big, impersonal place. Your doctor sounds like she knows what she is doing.

Serenity said...

ditto pamplemousse and meg... #1 - statistics, particularly in the US, can be... influenced.

#2 - your doctor does sound like she knows what she's talking about, and you like her. If it were me, I would stay with her- if anything because I liked her.

That's just me, though.

And I am very glad your flooding issue isn't going to cost you too much money.

MoMo said...

These are tough questions. I think liking your doctor huge in making your decision...you have to be comfortable with them. Shared risk programs are fantastic, if you have them available...maybe that 2 1/2 drive won't be so bad. Good luck!

Maya said...

Krista -
My shared risk plan in So. Cal is about $16 for 3 IVF and several FETs. It is of course based on the individual. But it is the ARC plan. If you don't get preg. you get 12K back.
Here is one of possibility that I wanted to throw out there. I know many people fly into their retrieval/transfer/rest and get their blood work done at home. I know this sounds a little crazy, but many people have done it this way, especially when there are only a few clinics in the country doing a new procedure. Actually my friend, who's husband had Cancer did this method with his cancer treatments in Washington state.
Just a thought. I hope something works out for you that is doable.

Krista said...

Thank you all for the comments. Thank you Meg for that article, it was very informative.

Lisa said...

Ack. Too many decisions. I travel about 3.5 - 4 hours each way (including a ferry) to go to my clinic. There is a so-called-fertility-centre here in my town run by the jerkiest of all jerks gynecologists (who also fudges his success rates by only taking patients who he thinks will be easy to treat)so it's worth it to me to go to Vancouver to see someone. I have all my bloodwork done here and the results are couriered to them, so I only need to make the trip a few times for ultrasounds and the actual procedure. If you're considering a place that's a commute maybe they could set something like that up?
I don't know of any shared risk programs in Canada either.

ninaB said...

Having been to 4 different clinics (and travelled out-of-town for everyone of them) I've learned a thing or two (haven't got a baby...but that's beside the point).
I think the clinic does matter. Some doctors are more skilled/experienced than others. Some clinics have better labs, better embryologists etc. and that can make a difference. How much does it matter, and does it matter more for difficult cases (older, poor responders..) I don't know.
Travelling for IVF sucks.
It's stressful enough as it is. I've always tried to have as much monitoring done close to home and my local RE has been good about this. It makes a huge difference. Nonetheless, I've still had to spend up to 2 weeks away from home for *each* cycle. 7 cycles altogether..it adds up.
The Canadian stats are so poorly collected and collated that it's almost impossible to tell which clinic is better (or not). There are good discussions on the IVFconnections boards in the Canada section- but you probably already know that. If you like your local clinic stick with it. Success is a numbers game. Hopefully your number will come up soon.

Anonymous said...

Halo, thanks author.
my page [url=http://viagra-store.info/]viara[/url].
Here you can buy http://viagra-store.info#viagra online.
Bye.

Anonymous said...

Wazzup, interesting.
go here [url=http://www.youthpeer.org/forum/topic.asp?TOPIC_ID=327]viara[/url].
Buy http://www.youthpeer.org/forum/topic.asp?TOPIC_ID=327#viagra online.
G'night.

Anonymous said...

Hi, cool site.
go here [url=http://www.theologicalforum.org/forum/topic.asp?TOPIC_ID=58]phentermine[/url].
Take http://www.theologicalforum.org/forum/topic.asp?TOPIC_ID=58#phentermine cheap.
thanks a lot.

Anonymous said...

Good morning, interesting information.
Look at [url=http://bowtrol-herbal.info]viagra[/url].
Here you can buy http://bowtrol-herbal.info#viagra best prices.
Bye-bye.